Phenon Updates

I couldn’t think of a clever title for this post – I think my brain may be a bit over-cooked.  But I can feel the blog post timer counting down, and thought I’d better post an update tonight, inarticulate or not! I’m going to start with the lovely things.  Rowan [...]

Thanks so much to everyone who sent us questions.  It was very helpful.  On Friday night, Shana (the attending doc) spent about 30 minutes on the phone with me talking through questions, research studies, hunches, and moral implications.  As a side note, I’m extraordinarily impressed by Shana’s ability to make [...]

We just heard from Payal.  She said Phenon needs radiation.  I have many, many questions before I feel like that’s a final decision, though.  Here’s the deal: The PET scan result is negative!  That’s a very good thing.  It means the cancer isn’t doing anything.  This is the clear result [...]

Since we haven’t updated since Phenon had to go to the hospital with a fever, I’ll just quickly say that she was back home two days later feeling pretty darn good.  We’re not sure what caused the fever, but it didn’t stick around for long.  So that’s a good thing. [...]

A big day, today was Phenon’s last chemo treatment.  It went pretty smoothly until she and Julie got home and then the fever started going up.  We were pretty well set for Phenon’s usual habit of skating right under a 100 degree temp for an evening and then waking up [...]

It has been quite a week.  We have had a lot of (capital “F”) Feelings this week.  Whenever we have Feelings, it’s hard for me to write a post, so I’ve been meaning to write every day this week, but haven’t gotten to it.  So, I’ve decided to try to [...]

Remember how I promised to post here about a person you could send your donations to?  Well, our friend Beth, whom we thought might need help, is doing fine – hooray!!  She may not need a bone marrow transplant after all, so she said she doesn’t need the donations right [...]

We have more than reached our goal now.  More contributions have continued to come in over night, even.  The thing is, you’ve already done it!  We have been very, very well taken care of.  A few contributors noted that we could pass the contribution forward if we wanted to, and [...]

OK, so I just updated the thermometer to $7942 as a $20 donation came in just moments ago. The way things have been going the past week I’m sure that we’ll be at $8000 or close enough not to matter by the time I finish writing…wait…what? Alright, Julie tells me [...]

We are really a bit a-flutter.  You all have consistently, brilliantly, and impressively risen far above the call of duty to astound us with your love and support.  I’m touched and tearful at the generosity of our supporters.  Many of you have contributed more, despite having already provided us with [...]

I agree.

Don't we ALL really, really hate cancer? I know I do. Anyways, Mazel tov to everyone!

While I will always love Loiederman the most... My brother is an eighth grader at Parkland now and loves it! ...

Good news is amazing! And Phenon and I make a great pair for Artful Dodger. Congrats Rowan! He should have ...

That is super exciting news for Rowan and Phenon! The timing for Rowan is spot on for him to lead ...

You all have been very strong up to this point and have dealt with all of this in a positive ...

Congratulations Rowan-that is incredibky exciting news!! We can't wait to see Oliver in the spring. As for radiation and cancer ...

Please please please ask me any radiation-related questions! I may be able to help!

Do it. Lets kill this shit for good. I hate it.

Will it affect how much school she is able to attend?