Phenon Updates

After talking to Em for a while about all of the things Phenon’s docs have been telling us to be on the alert for, she said this image came to mind.  It seems a perfect encapsulation of where we’re at! For those who are not Harry Potter fans (is there [...]

Monday was Phenon’s last day of treatment at the fabulous University of Maryland Medical Center.  Rowan and I joined Julie for the special event and loved meeting all the amazing people who have been taking care of our girl for the past three weeks. On the last day of treatment [...]

Phenon’s last radiation treatment is Monday, March 26th.  Only one to go!  When she is done, she will ring this bell.  We have seen several others get to ring this bell.  It’s a happy thing!  All of the radiation technologists gather round, and cheer wildly as the (now-former) patient rings [...]

Radiation began Monday, and we think it’s going to be fine.  The staff are amazingly solicitous and lovely, and they provide lots of candy for each accomplished event.  Seriously.  Last night, three different staff members ran to Phenon with tootsie pops after radiation was finished.  Then a fourth asked her [...]

What a difference a second opinion makes!  It took a little while, because we were trying to arrange for a consultation with Children’s Hospital of Philadelphia from a distance.  Since a physical exam with Phenon yields exactly NO information, we didn’t want to take any more leave time and make the [...]

…and a dude who is a comedian who went through chemo…well then this would totally be her! Shit Cancer Patients Say Thanks Woody Roseland, and BoingBoing!

I couldn’t think of a clever title for this post – I think my brain may be a bit over-cooked.  But I can feel the blog post timer counting down, and thought I’d better post an update tonight, inarticulate or not! I’m going to start with the lovely things.  Rowan [...]

Thanks so much to everyone who sent us questions.  It was very helpful.  On Friday night, Shana (the attending doc) spent about 30 minutes on the phone with me talking through questions, research studies, hunches, and moral implications.  As a side note, I’m extraordinarily impressed by Shana’s ability to make [...]

We just heard from Payal.  She said Phenon needs radiation.  I have many, many questions before I feel like that’s a final decision, though.  Here’s the deal: The PET scan result is negative!  That’s a very good thing.  It means the cancer isn’t doing anything.  This is the clear result [...]

Since we haven’t updated since Phenon had to go to the hospital with a fever, I’ll just quickly say that she was back home two days later feeling pretty darn good.  We’re not sure what caused the fever, but it didn’t stick around for long.  So that’s a good thing. [...]

Yay! It's over! Bye bye cancer treatment! :D

YA!!!!!!!!! Im so happy for you!!!!!!!!!!!!!

Congrats!

yayyy!!!!!

Hugs and love to you Phenon! It's over! Love, GranCourtney

I could hear the bell ringing all the way to Mount Pleasant. Congratulations, Phenon. It is OOOOOOOOOOver.

That's so great!!! Yay!! :)

This brought tears to my eyes! I am so happy for all of you that this is DONE!!!

just the best ever - congrats!!

YAY!!!!