Phenon Updates archive

Date : October 2011 (27)

Surgeons Suck (A Rant)

by Tim
Published on: October 31, 2011 10:10 pm
Comments: 3 Comments

I know that’s probably unfair to say.  I’ll allow that it’s even possible that it might not be true of all surgeons.  Heck, I’ll even accept that there might be dozens of surgeons out there who don’t suck.  It’s possible that some of you reading this may even know or be related to a surgeon, and to you I apologize.  It’s just that I keep waiting for a surgeon to not live up to the negative stereotype that I always see them portrayed as and I keep being disappointed.  You know the one: incredibly skilled but completely unable to talk to people who are not surgeons, and flexing through life with a disregard for human emotion that one can almost taste seeping from their every pore.

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The Waiting Game is a Sad Game

by Tim
Published on: October 31, 2011 8:25 am
Comments: 3 Comments

We’re still waiting to hear what surgery thinks of the x-rays taken this morning and whether there will be progress toward getting Phenon’s chest tube out soon.  I’m starting to feel like we’ll never get out of here and I know she has got to be feeling the same.

Some morning tears about missing trick-or-treating this year for the first time have settled into what looks like a pretty blue mood. Halloween is a big holiday in our family and spending it in the hospital has really got her feeling down.   Cheering welcome.

I’m sure texts from friends would be especially welcome right now and Phenon is really just focusing on the visits that are set up for today.  I’ll update again when surgery tells us what they see in the x-ray.

Sleeping Off the Visitors

by Tim
Published on: October 30, 2011 6:59 pm
Comments: 3 Comments

Wow!  That was a busy day.  I think Phenon had visitors straight from 11:00am-5:00pm and was completely energized the entire time.  I think she was just showing off when she ate an entire Boca Burger with mustard and kept it down.  Then she ate some Jelly Beans and it was obvious that she was feeling spivy.  Let’s see if we can remember everyone who came through today: there was Griffin, Kelly, Yasna, Manpreet, Aliza, Kyra, MacKenzie, Priscilla (and all of their parents!  Parents were not a minor part of the visit for us, just for Phenon 🙂 ).  Phenon will correct me if I missed anyone.  It was a madhouse of kids and parents and the Telestrations game brought by Jean yesterday was a huge hit with all the kids.  And me.  I didn’t do well.

The Girls…The Game

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Ready for Visitors!

by Julie
Published on: October 30, 2011 9:33 am
Comments: 5 Comments

It was a reasonable night.  No more vomiting, decent rest.  Nurses who left the lights out when checking her vitals.  I went home this morning, showered, fed the dogs, put in a load of laundry, got clean clothes for the girl., brought back Starbucks for all, and croissant went over well for breakfast. I’ve straightened up the room, and Phenon has opened gifts and cards that were sent/brought to the house (thanks Caitlin and Marty and Beaconfire folks).  Phenon opened the game that Jean and Sarah brought for her yesterday (Telestrations – yay yay!).  We are now officially open for visitors.  Mind you, visiting hours don’t begin until 10, but she’s ready NOW.

Living in One Room

by Julie
Published on: October 29, 2011 8:36 pm
Comments: 4 Comments

It doesn’t seem like it should be possible to update a blog so many times in one day, when all you are doing in living in a single room.  We don’t leave this room, usually not even to find food.  We’re entirely contained in room 703, 7th floor East.  And yet, there is constant eventfulness.  I wish so much didn’t happen in one day.  All of the thoughtful “how to kill time” gifts – I wish Phenon had used all of them and was bored to tears.  But we’ve barely touched any of them.

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Wow, That REALLY Sucked

by Tim
Published on: October 29, 2011 5:11 pm
Comments: 2 Comments

The conclusion was reached over the last few hours that the IV in Phenon’s arm was pretty much shot and not delivering her the full dose of Dilaudid which was resulting in her being in considerably more pain than necessary.  This is what started happening when the IV was in her arm right before it blew up like a Popeye arm.  The obvious thing to do was to take it out and put an IV in the new port they installed two days ago.  Everyone was kind of unclear why she had come back from surgery without an IV in the thing that was installed specifically for that purpose that could have been done when she was unconscious.  Why indeed?

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Saturday Afternoon Waiting for Snow…and Meds…and Docs…and Freedom

by Tim
Published on: October 29, 2011 12:56 pm
Comments: 4 Comments

Phenon had a pretty good night last night and, with the exception of a few blips of pretty intense pain when she got out of bed, she slept for about 12 hours.  It’s not surprising that she needed a lot of sleep, as there were many visitors yesterday.  Phenon had a great time playing a game with Jean, Sarah, and I that I can’t remember the name of right now [Julie adds:  Tellestrations].  Jean is hunting it down right now to bring it for Phenon to play with guests she’s expecting later today. Phenon also had visits from Molly and her mom (Imagination Stage friends), Laurie and Caitlyn, and Eleanor, Aliza, and Gabbie.  Fun day, fun picutures.  Julie will post some of them later.

 

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Mediocre Night Plus HATS!

by Julie
Published on: October 28, 2011 8:08 am
Comments: 17 Comments

 

Phenon had a perfectly mediocre night.  Pain management was better, but still plenty of sleep disrupters.  But she did get periods of decent sleep.  This morning, the sad news that the chest tube will not be coming out today.  We were really hoping the chest tube was coming out today.  Visitors will help lessen the blow!

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Surgery #2 Went Well & A Wishlist from Phenon

by Tim
Published on: October 27, 2011 8:41 pm
Comments: 6 Comments

Surgery today was fairly uneventful and lasted a couple of hours.  Phenon says that “it hurt like hell, and she remembers a lot more” about the waking up after.  Not, I hope the actual surgery itself.  Unfortunately the chest tube had to stay in; we were really hoping that it would be able to come out while she was on general anesthesia, but the surgeon decided that she wanted to wait another day.  Hopefully it will come out tomorrow.  That’s the part that continues to cause Phenon the most pain and once it comes out I hope things will feel more manageable to her.

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Surgery Morning Quick Update

by Tim
Published on: October 27, 2011 9:54 am
Comments: 5 Comments

I got back to the hospital an hour ago and was very surprised to see Phenon looking like she was feeling pretty good (relatively speaking).  The night sucked, of that there is no doubt, but she’s sitting up, watching Finding Nemo and feeling ready for surgery that should be in an hour or two.  Payal from Oncology came by and I think Phenon was relived to hear that she would be in the operating room while the procedures are being done.

She has also requested that I film her when again when they give her the first goofy shot in prep and again when waking up since she doesn’t remember those things happening last time.  Man, that girl really likes to know what’s going on.  I couldn’t be more proud of how she is handling this very shitty hand that she’s been dealt.

Rowan is catching up on reading the blog today, so maybe I should watch my goddamn language.  Oh shit!  Oops.  I’m such a shitty parent. Now that was just completely uncalled for.  Sorry Rowan.  At least I didn’t type fu…  I almost had you.

Speaking of Rowan, he is a total trooper as well.  He has been rolling with being passed around houses the first few days and the scary things he’s been hearing from us.  It was great to spend a night at home with him last night even if he was just slightly more interested in World of Warcraft than spending time with me.  I understand, I’d rather be playing WoW than this shit too.

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